肝苦人的甘苦談—慢性Ｂ型肝炎患者施打干擾素治療受苦經驗之研究

南華大學機構典藏系統 > 人文學院 > 生死學系(生死學系碩士班,哲學與生命教育碩士班) > 博碩士論文-生死學系碩士班 > Item 987654321/18274

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題名:	肝苦人的甘苦談—慢性Ｂ型肝炎患者施打干擾素治療受苦經驗之研究
其他題名:	Dialogues with Hepatitis Victims: The Research of Chronic Hepatitis B Patients' Suffering of Taking Interferon Therapy
作者:	張千惠 Chang, Chien-hui
貢獻者:	生死學研究所游金潾 Jin-lin You
關鍵詞:	慢性Ｂ型肝炎;干擾素;受苦經驗;整體累 suffering;interferon;Chronic hepatitis B;total tiredness
日期:	2011
上傳時間:	2015-01-20 10:11:45 (UTC+8)
摘要:	本研究目的在探討慢性Ｂ型肝炎患者接受干擾素治療的受苦經驗，研究者透過現象學的研究法，訪談四位接受治療的慢性Ｂ型肝炎患者。在互為主體之體察及文本反覆閱讀歸納分析後，針對慢性Ｂ型肝炎患者罹病後並接受干擾素治療的生活世界，以時間軸線方式進行八大主題之描寫與詮釋：一、體檢報告異常的宣告；二、成為疾病王國的一員；三、穿梭白色巨塔；四、干擾素與病毒的化學戰爭；五、戰爭下受苦的身軀；六、苦守愛肝新生活；七、擺盪不安受苦的心；八、瞥見死亡發現愛。　　　此外，研究者進行兩部分的綜合討論，分別為：一、肝苦人的置身處境；二、肝苦人苦的呈現。本研究發現慢性Ｂ型肝炎患者的內心，會因肝發炎指數與身體感受到累的影響而處於擺盪不安中，另因疾病的特殊性，在生理、心理、社會與靈性的累中而產生整體累。藉由此研究深入了解Ｂ型肝炎患者治療中的受苦經驗，期許大眾可以更清楚理解他們罹病治療的真實經歷與需求，進而重視患者的感受，並給予傾聽與支持。　　The purpose of this research was to explore chronic hepatitis B patients’ suffering experience of accepting interferon therapy. The researcher interviewed four chronic hepatitis B patients who accepted the therapy through the research method of phenomenology. Via the experience and perception of intersubjectivity, and after the repeated reading, induction and analysis of text, the researcher aimed at chronic hepatitis B patients’ life world after they suffered from the disease and accepted interferon therapy to do the description and interpretation of eight major themes with the way of time axis: 1. The declaration of abnormal result of health examination report; 2. Becoming one member of the kingdom of disease; 3. Shuttling back and forth within the “great white tower (hospital);” 4. The chemical war between interferon and virus; 5. The suffering body under the said war; 6. Painstakingly guarding the new life of cherishing the liver; 7. Swaying and uneasy suffering heart; 8. Getting a glimpse of death, and finding love.　　　Besides, the researcher did two parts of comprehensive discussion as follows: 1. the plight of the hepatitis victims, and 2: the presentation of the hepatitis victims’ sufferings. The research found that the heart of a chronic hepatitis B patient would be in a swaying and uneasy state because of GOT and GPT, as well as the influence of the body’s feeling of tiredness; moreover, owing to the disease’s particularity, the total tiredness would be produced by the physical, psychological, social, and spiritual tiredness. By means of the research, the researcher had a deep understanding of hepatitis B patients’ suffering experience during the treatment, expecting the people to comprehend more clearly their true experience of suffering from the disease and therapy, as well as their demands, and pay attention to the patients’ feeling further and offer listening and support.
顯示於類別:	[生死學系(生死學系碩士班,哲學與生命教育碩士班)] 博碩士論文-生死學系碩士班

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