一位日本腦炎患者家族陪伴經驗之敍說研究

NHUIR > College of Humanities > Department of Life-and-Death Studies > Disserations and Theses(M. A. Program in Life-and-Death Studies) > Item 987654321/19683

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Title:	一位日本腦炎患者家族陪伴經驗之敍說研究
Other Titles:	A Narrative Research of Family Companion Experience for a Patient with Japanese Encephalitis
Authors:	鍾富連 Chung, Fu-lian
Contributors:	生死學研究所李燕蕙 Yan-huei Li
Keywords:	陪伴經驗;家族;日本腦炎;敘說研究 Family;Narrative Research;Japanese Encephalitis;Companion Experience
Date:	2008
Issue Date:	2015-03-19 11:46:31 (UTC+8)
Abstract:	國內每年都有罹患日本腦炎的病例，感染此疾，其後遺症相當多重而且嚴重。患者不僅得面對自我生病後的生理缺陷，在心理的自我復健、重整及再出發，亦是一條艱辛的漫漫長路。患者與陪伴照料的家族，如何於深受疾苦仍勇敢結伴而行，乃家中有長期需照顧的病患、家屬必須面對的棘手問題。　　　　本論文旨在探討一位日本腦炎患者家族陪伴患者的獨特生活經驗，採取質性研究中的敘事研究方法，透過陪伴家族之主要照顧者母親及患者之四位姐姐的深度訪談，以她們自我敘說的生命故事為文本，再以「整體－內容」呈現其生命經驗，以「類別－內容」分析她們生命歷程中獨特的陪伴經驗，以及從中而來的心理歷程、生命課題及自我的轉變。　　　　根據研究所獲得的結論有：一、發現家族陪伴大弟的互動及心理歷程；二、發現家族在陪伴大弟的生命歷程上，面臨的諸多生命課題下的自我轉變與成長：關係療癒傷痛家族愛的聚會；充滿鬥志及希望的積極人生觀；勇敢以愛承擔此世之使命與責任。　　　　期望本研究對於日本腦炎患者及其家屬，提供受苦者一個契合個案真實情境與生活經驗的照護與陪伴的參考。目前日本腦炎的學術論文，集中於探討日本腦炎病毒、病媒蚊、病理科學為主的研究，冀望此論文透過對罹患日本腦炎患者的家族陪伴經驗所做的整體性瞭解，能提供日本腦炎相關學術研究一個新的視域。於科學性的日本腦炎認知範疇外，增建人文（患者、家屬）與日本腦炎後遺症共在的心路歷程。更期待能提供予其他罹患日本腦炎或慢性病患者家庭之照顧，一個有用的背景參照與反省資料，並且可以有助於提昇照顧的品質，能更貼近人性關懷與真誠對待。　　There are still many people who suffer from Japanese encephalitis in Taiwan every year. If people are infected with this disease, they will have quite numerous and serious sequelae. They must not only confront the physical disorder but also adjust themselves to get through the mental suffering. Actually, it is really difficult for the family to keep the patients company bravely, especially for the chronic one.　　　　This research probed into the unique life experience of a family companion with a patient who suffered form Japanese encephalitis by using the narrative research in the qualitative research. Its text was based on the interview with the patient’s mother and his four elder sisters. Furthermore, it utilized “whole-content” to present their experience in life as well as analyzed their unique process of companion experience by “category-content” and their experience in the mental process, the subject of being and individual change.　　　　It drew two conclusions from the research. The first conclusion was their mental process and interaction while accompanying with the patient of the family. The last one was the companion made the family gradually accept the individual change and progress in life. For instant, get through well from the torture for the family by the reunion with passion and love, have positive philosophy with energy and hope, and bravely take the responsibility with love in life.　　　　This research looked forward to providing more reference about real situation and the attention as well as companion in daily life for the patients with Japanese encephalitis and their family. To date, theses about Japanese encephalitis pay attention to the research of the virus of Japanese encephalitis, mosquitoes and medical science. Thus, this research aimed at providing not only more information to the patients with Japanese encephalitis and their family to take care of and accompany but also a new viewpoint for the academic research. It also contributed the useful experience to the patients with sequelae of Japanese encephalitis and their family except for the research of this disease in scientific field. In addition, to give more useful background knowledge and information and increase the quality and humanistic care to the family, this research focused on the experience of how to take good care of the patients with Japanese encephalitis or chronic disease.
Appears in Collections:	[Department of Life-and-Death Studies] Disserations and Theses(M. A. Program in Life-and-Death Studies)

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