腦中風失能個案之家庭主要照顧者的心理壓力及社會支持需求研究

NHUIR > College of Humanities > Department of Life-and-Death Studies > Disserations and Theses(M. A. Program in Life-and-Death Studies) > Item 987654321/26482

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Title:	腦中風失能個案之家庭主要照顧者的心理壓力及社會支持需求研究
Other Titles:	A Study of Stroke Disability Case about Primary Family Caregivers' Psychological Stress and Needs of Social Support
Authors:	楊雅琇 YANG, YA-HSIU
Contributors:	生死學系碩士班姚卿騰 YAO, CHING-TENG
Keywords:	心理壓力;社會支持;家庭主要照顧者;腦中風失能;需求 social support;needs;psychological stress;primary family caregivers;stroke disability
Date:	2018
Issue Date:	2018-12-18 17:07:16 (UTC+8)
Abstract:	本研究目的旨在探討腦中風失能個案家庭主要照顧者的心理壓力及社會支持需求。研究方法採用質性研究法，以半結構式深度訪談方法進行探究，於通過倫理審查後，進入醫院復健科收案，另外於社區收一位個案，總共收八位受訪個案。本研究結果發現如下：一、腦中風家庭主要照顧者壓力來源包含照顧責任負荷、生活作息受限、缺乏照顧知能、缺乏替代人力、經濟困難、情緒負荷、社交活動減少、照顧者終老時受照顧者乏人照顧。二、心理壓力對腦中風家庭主要照顧者之影響包含失眠、健康受損、疲倦、負面情緒、社交活動受限、生活品質低落等負面影響。三、腦中風家庭主要照顧者因應心理壓力之策略為問題焦點因應與情緒焦點因應並用。四、腦中風家庭主要照顧者社會支持需求包含居家復健服務、交通接送服務、居家環境改善補助、居家喘息服務及輔具購買補助。五、腦中風家庭主要照顧者社會支持需求困境包含居家喘息服務缺乏彈性、居家喘息服務無法跨區使用、居家環境改善申請流程僵化、長照服務申請手續繁瑣、長照資訊傳達缺乏效率、對長照政策不瞭解。　　依據研究結果發現腦中風家庭主要照顧者社會支持需求與長照政策提供之服務有落差。所以，本研究建議長照政策發展應符合照顧者需求，提供更多元的服務供照顧者選擇，以減輕照顧壓力。　　This study aims to explore the case of primary family caregivers' psychological stress and needs of social support regarding brain stroke disability. Qualitative research was employed, with in-depth interviews of semi-structured methods. Cases were collected via the rehabilitation section of the hospital after passing human research ethics. Additionally, one case was gathered in a community outside the hospital. There were eight interviewed cases in total. The results are in the following.　　First, the stresses regarding the primary family caregivers of stroke disability are derived from the load of caring responsibility, restriction of lifestyle, lack of knowledge and skill concerning care, lack of alternative manpower, economic difficulty, emotional load, decrease of social activity, and lack of care for the caretaker while the caregiver is dead.　　Second, the influences of psychological stress on primary family caregivers of stroke disability include insomnia, loss of health, fatigue, negative emotion, restricted social activities, and downcast of life quality.　　Third, strategies about coping with psychological stress regarding primary family caregivers of stroke disability consisting in both problem-focused coping and emotional-focused coping.　　Fourth, needs of social support of primary family caregivers of stroke disability include services of home rehabilitation, services of picking up and dropping off for transportation, subsidy of improvements for home surroundings, services of home respite, and subsidy of auxiliary equipment purchase.　　Fifth, difficulties regarding needs of social support of primary family caregivers of stroke disability including inflexibility of home respite services, home respite services being unable to be used across territories, fossilization of application process for improving home surroundings, complication of application formalities for long-term care service, lack of efficiency regarding communication of long-term care information, and unawareness of long-term care policies.　　According to the discoveries of the results in this study, there are disparities between the needs of social support of primary family caregivers and the services provided by long-term policies. Therefore, this study suggests that the development of long-term care policies should correspond to the needs of caregivers and provide more plural services for caregivers' choices, so as to alleviate caregivers' stresses.
Appears in Collections:	[Department of Life-and-Death Studies] Disserations and Theses(M. A. Program in Life-and-Death Studies)

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